Tuesday, October 4, 2011

Just Venting

I apologize in advance if this post seems negative or is so poorly written that you want to poke your eyes out.

I'm day 7 into my antibiotic (Levaquin) and all I want to do is sleep. Even right after waking up from a long nap or a good night's sleep, I just feel exhausted.  I'm also getting intense sinus headaches which makes me worry that the Levaquin isn't helping out enough (my lungs feel better but my head feels worse).  I took my temp tonight and it's 99.0 which again makes me a little nervous because I'm not used to running a temp a week into an abx course (not that 99.0 is really even considered a real temp).

So, I called my doc tonight and left her a message. I go to see her next week, but I'm concerned that she's going to want to put me on a PICC.  I know that other cysters and fibros have these routinely and probably don't even bat an eye when they're told they need one, but they still scare me.  I've only had 2 and each one has made me feel so miserable for the first week or so of the treatment.  I'm trying to find that balance between letting my body handle the sickness and letting IVs help me.  I'm just unsure what to do this time around....I don't know if my fear is prohibiting me from seeing the whole picture or not.

All I know is I'm day 7 into my abx, my heads hurting, and I'm exhausted. I'm also blowing out green snot, but I do that on pretty regular basis anyway (ever since my sinus surgery). UGH...so frustrating.  I guess we'll just see what the doctor has to say.


  1. Hey cyster! you never have to apologize for being negative in a post. Sometimes CF sucks and being negative is called for :)

    I hope you feel better soon and don't need a PICC. Last time I had one placed I was telling the nurse in radiology how nervous I was. He asked if it was my first PICC and was shocked when I said it was my 9th and yet I was STILL nervous.

    The only thing I can say is that after a PICC I feel AWESOME! I always forget how clear my lungs feel and how much energy I get after a PICC. The are no fun, but in the long run if it keeps you healthy then it is worth it. But you still totally have a right to complain! Taking a shower sucks, waking up at all hours to administer meds sucks, getting yucky side effects from meds suck, basically PICCS suck and you have a right to complain.

  2. Sorry for dropping letters and some of my crazy grammar. I reread it AFTER I posted...yikes!

  3. Thank you so much for commenting on this. I'm so glad to hear that you were nervous even though it was your 9th one(Wish you didn't have to be nervous, but glad I'm not alone)!

    I actually heard back from my CF team today. They're going to keep doing the Levaquin because they can't treat the MRSA in my sinuses anyway (I'm allergic to Bactrum..yay). So, for now, that's the plan. I see them next week anyway. But, they want me to postpone TTC until after being off of the Levaquin and I'm right around the time when I should be ovulating - go figure.

    Don't worry about any grammar problems - my posts AND comments are filled with them :)


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