I’ve been blogging and reading blogs for almost 2 months now,
and I’m amazed at how it changed my perception toward my disease and life for
the better.
I never thought that I would be the type of person who had
the dedication and desire to blog on a regular basis. I love writing, but to until a few months
ago, sharing my story with the world seemed selfish to me. I have come to realize that while there is a “selfish”
aspect to blogging, it extends far beyond that.
I like to keep track of where my viewers come from, and the fact that
people from around the United States and from other countries have viewed my
blog amazes me. It means that while I’m enjoying venting and writing about my
journey with Cystic Fibrosis, others are enjoying it or learning from it as
well.
I launched my Wordpress site about a month ago, and I have
had tremendous response there as well. I have subscribers, and have received
over 500 views on that page. I’ve had people sharing my articles and rating
them, and I’ve officially been tweeted.
It’s one of the best feelings in the world to gain acknowledgement for
what you’ve written and in turn know that you are slowly raising awareness
about cystic fibrosis.
In addition, I’m slowly becoming a better writer (at least
in my opinion) also. I’m working on
phrasing sentences better, and trying to make my writing enjoyable to my
readers. Since I hope to one day complete a novel, this skill is critical for
me to learn. Blogging offers the perfect
platform to hone my skills and gain personal response from readers. I look back at what I wrote two months ago,
or even last month, and feel that my current writing is stronger. I’m so glad that I have gotten into writing
blogs.
Even more important, however, I have been thoroughly
enjoying reading blogs. I have a good
number of blogs that I check daily for updates.
I eagerly await new posts so that I can see how my fellow cysters and
fibros are doing. To me, reading other
blogs feels like I am offered a chance to read their journal or diary. I feel
connected to others in a deep way, and it never ceases to amaze me how much
people truly expose their soul in blogging. New posts are like candy to me, and
I also enjoy commenting on what I’ve read when I feel I have something
pertinent to say.
It also amazes me how many of the authors reply to comments
that I (or anyone) makes. They enjoy the feedback and work hard to acknowledge
comments and answer questions. It’s truly remarkable. I am surprised and encouraged by their
dedication to their readers, and to raising awareness for CF. I cannot emphasize enough that the group of
authors I follow are truly amazing and inspirational people.
I also have to say that I have gained a “family” through
this blogging experience. I feel that I
know a few girls, in particular, very well.
We are all on a similar road in our lives and beating CF on a daily
basis. I feel like they are my “go-to”
people when I have a question, and I look forward to talking with them about
new changes (or lack of changes) in their life.
My husband, family, and friends are a wonderful support system that I
wouldn’t change for the world, but there is something to be said for my “cysters.” My family/friends sympathize with me, listen
to me vent, and love me unconditionally, but my cysters understand exactly what
I’ve gone or am going through. They know
what it means to gag from coughing so much, to have a CF belly, to be upset
when your PFTs go down, to feel the sadness, confusion, and anger of a fellow
cyster or fibro passing away before his or her time, and to feel the
frustration that this disease carries with it daily. I am so blessed to have these people in my
life and I can’t wait to continue following their journeys.
Finally, blogging has led me to discover www.cysticlife.org. I am so grateful to its creators, Mr. and
Mrs. Sharpe! It is the best outlet for cysters and fibros in the entire world.
The site focuses on offering a POSITIVE and ENCOURAGING community. If I ever
have a CF question, I head there right away. If it hasn’t already been asked, I
can usually pose a question and receive a few responses by the end of the day.
The “family” that is created on that site is incredible. I have learned more
about CF than I ever knew before, have gained a more positive outlook for this
disease, and have gained perspective in life all from this site.
All in all, these last two months have been a wonderful
change for me. I’m growing daily as a cyster and a writer and I’m gaining a
sense of family and community through blogging.
I’m so grateful for all of my continued readers who push me to make my
posts better and more interesting, and I’m grateful for my fellow writers as
well. I am so proud to be part of this
cystic fibrosis community, and I’m so blessed to have people who care about me
enough to follow my story. I live such
an amazing and blessed life - hard to believe it’s all real at times. J
Pretty cool, huh? It's hard to understand those deep and immediate ties we feel to people we'll likely never meet... until you actually experience it! I have an entire "CF family" online now, and I honestly don't know how I survived without them before I started blogging.
ReplyDeleteJenny, I couldn't say it any better myself. I have NO idea how I got through the past 24 years without my CF family. I'm also so glad I'm not going through the TTC journey alone. I don't know how well I would do if I didn't have my cysters for support. I'm so glad you feel the same way I do - it's such an incredible feeling! Thank you for commenting!
ReplyDeleteLovely post, Megan! I've enjoyed reading your blog and getting to know you, especially as a fellow TTC CFer!
ReplyDeleteCouldn't agree more with everything you said. There is a lot of power in blogging and it is such a great way to extend your CF family. Also, have to admit that I love your glowing review of CysticLife.org :)
ReplyDeleteThank you so much Cindy. I also have thoroughly enjoyed getting to know you through your blog. You have written a lot of posts that make me think in depth about faith, marriage, and love! Thank you for sharing your gift with the world!
ReplyDeleteRonnie, glad you enjoyed the review. It was all 100% honest. I'm not sure what I did before I found out about cystic life. I feel a lot more comfortable and calm since finding your site, and I appreciate that more than I can ever express in words.
I agree with this post 100%. Being diagnosed at 14, CF quickly became my secret. At 14 you don't want to be seen as different and it took years for me to admit I had a disease to anyone! I wish I could have connected to a CFer back then so I wouldn't have to live with shame/secrets. Within my CF family I feel "normal" and never worry about being judged.
ReplyDelete